La tahzan innAllaha ma'ana

Tonight is somehow different unlike any other nights. Irfan n i will be spending our nx few nights in the hospital starting tomorrow.

Ya Allah, sembuhkanlah anakku Muhammad Irfan Faris dan kuatkanlah semangatku. Hilangkanlah kesedihan dalam hati ini...jadikanlah kami hamba yg sentiasa redha dgn ujian dan ketentuanmu.

Supraglottoplasty

Irfan will be headed for an airway surgery next Mon or Tues. A f/up check up yesterday wasnt going very well. His weight is only 3.7kg. For a 2mo baby this is considered way below the percentiles for normal babies developmental milestones. Dr Anura said he looked tired while breathing. She performed another round of scope yesterday, and said that the airway sometimes were blocked quite significantly when irfan is breathing :(

Pls pls pray for Irfan. While i was puting high hopes n is so looking fwd for the surgery, i at the same times couldnt help not to shed tears while talking to Dr Anura yesterday. Post -op for the 1st few days may be hard for him due to swelling, but i hope irfan will be doing great and pull through it. The surgery may not 100% cure him, but i hope it will at least help him to breath better. The past few weeks have been rough for both of us, i hope there'll be an end to this some day.

Moga Allah sembuhkan anak mama. Tq to all dear frens for ur support n words of encouragemnt. It really meant a lot to me.

i am 8 weeks old

yesterday!

Here go some smiles for u mama..pls dont cry because of me coz i am sure will outgrow it with Allah's will, just pls be patient with me.

life goes on

...though u never know what awaits in the future. You always want the best and pray for the best, but Allah has a better plan for you.

Hence pls be strong dear self.

Irfan...coping with Laryngomalacia

Irfan was diagnosed of having laryngomalacia (LM, i think his condition is moderate to severe) on 12/3/2015. We detected something was wrong with him when he was about 6 weeks old - the presence of stridor (noisy breathing), and significant neck and chest retractions when breathing.

Definition of LM: is a congenital softening of the tissues of the larynx above the vocak cords. The tissues are malformed n floppy, causing the tissues to fall over the airway opening n partially block it.
source: www.chop.edu

After being referred by his paed, we had our first appmt with Dr Anura, paed ENT at UMSC on 12hb, and she performed scope via Irfan's nose to confirm on the diagnosis. Irfan was given reflux medication to prevent his larynx from getting swollen and worsen when acid reflux happened (GERD/reflux and LM always come
me hand in hand). We will meet up with Dr Anura again in 2 weeks time to check on his progress, which is so depressing as i count the days. Dr Anura was more concern on his neck retractions, which she alarmed on the possibility of having a surgery to correct the situations (ok i cried everytime i think about the surgery, Ya Allah pls give me the strength!).

Now i understand why despite Irfan is having frequent nursing, he did not gain weight as much as he should. He only gained 400g in his first month, and another 430g within the last 2 weeks. He consumed more calories than what the body can takes in his effort to breath. He at times will choke and gag when he drinks too much, and so far has vomitted twice. Poor my baby, may Allah ease your burden and heal your pain amin.

I now join a FB page called 'Copping with Laryngomalacia' for better understanding on this congenital issues. It is a good source of info that parents whose babies and todds are suffering from LM are sharing their experience and concerns pertaining to handling n coping with babies with LM. It is really heart-wrenching the more i read about their stories, but i just couldnt stop myself from wanting to know more about LM so that i can get myself prepared for the worst.

That's all for now peeps. Tak boleh tulis byk2 nnt lg byk air mata mengalir huhu. Pls pray for baby Irfan. He is just to small to cope with this. Your thoughts and prayers are much appreciated. Hugs.

-the Malacia mom-

kids' helmet

The kids now can ride with their new helmets. Mama jeles bangat tgk derang...x sabar nk abis pantang and keluar round tmn dgn beskal gaks huhu

My Dear warehouse sale

is currently on until 15th March if i recall correctly. So these are stuffs bought by hubby yesterday. We initially planned to hunt for a new car seat, but after comparing the features n functions, we thought of just using the old ones bought for Firas. not much difference as commented by hubby.

What we bought:
2 pillows rm9 each
2 stroller fan rm15 each
bottle/food warmer rm59
2 musical toys rm20 each
cushion pillow rm15

i am...

5 weeks young!

Current behaviour:
tdo kejap2 waktu siang. Baby can do power nap too? hoho. Avg tdo 10-15min...paling lama 1/2jam tu pon mama rasa nk lompat bintang dah :p

Mlm consistent bgn every 1hr for nursing. Masuk subuh sampai ke 9am mmg x tdo dah..tahan mata org kata. Awatla x ikut perangai mama and abah yg kuat tdo :p

Mintak2la awak berubah bila mama dh masuk keje nnt. Bateri mama mmg blink2 merah sokmo...flat dik ooii!

Lega sgt dah setel Maps..sambil awak tak keruan sbb takde org pegang...sambil mama kelam kabut key in results.

Cluster feeding and growth spurts

as early as 5 week? Like it or not this is true and am trying to 'enjoy' every minute of it!
Kellymom says it is common for newborn to hit his growth spurts at 4-6weeks and goes into cluster feeding...sigh*

So what Irfan does nowadays...nurse almost every hr at night, and continuous nursing throughout the day with a short 10-15min power nap in between..sabar sabar! I am considered lucky if his sleeping time stretch for 1 hr..which is very rare to happen. The time will pass before u knew it, must keep reciting this mantra to keep me calm...so bertabah jela yer mama!

The good side of cluster feeding, this will establish the right level of milk supply to satisfy his needs. The not so good thing abt it....it is so tiring that u practically dont hv the time to do other things other than glued to ur couch :( And the sad thing is, theres no way u can find time to express ur milk for the frozen EBM huhu. mcm susah nk capai kpi b4 masuk keje nih haishhh

ok mama..igt..this is common and not only u are experiencing it. I looked up in the forum for this topic n there was this one mommy whos son is nursing for a continuous 8hr during the day! Huish sgtla menduga iman :)

KEEP.CALM.AND.ENJOY.CLUSTER.FEEDING.